Saturday, July 04, 2009

new blog

I have an announcement to make.
I'm starting a new blog. Yup, you heard right. It's name is G is for gluten.
I don't think I'll be posting here after transferring to it, it's still kind of in it's baby stage at the moment but it would be cool to have support for it while it grows.
Oh, and by the way; I don't have coeliacs. I know what your next question is; why am I starting a gluten-free blog if I'm only gluten sensitive? Well, G-sensitive people need to live gluten free too [and actually may find it kind of difficult because we don't get a government subsidy for our food... boo! gluten still makes me sick! bah!]
I'm not going to start a rant, you can read my 'story of gluten' here.


Anyway, peace out 'the utterance' and hello 'the G.' Looking at the above picture you can tell that I need to load fireworks onto this computer ay, it's way too fluffy. Oh well, lets hope my cooking skills are better than my web design ones.

Check it out at: www.gisforgluten.blogspot.com

Saturday, June 20, 2009

The biopsy.

Ok, I know that many of you will be like "here she goes again!" but I feel obliged to offer an account of the operation [yes it's an operation] I underwent last Thursday.

The day started off with mum poking her head in my door, "It's 7 O'clock" she said. It was still really, really dark so I turned over wondering why mum decided to wake me that early. It wasn't like I had to have time to eat breakfast before we left.

Before an operation like a biopsy the patient isn't allowed to eat anything within six or so hours before the operation. Considering this, I finished off my last packet of squiggles [the best bickies
in the universe] the night before.

It was really frosty when we left and I was feeling nervous even though I tried not to. But I was armed with the 'waiting room bingo' cards that I'd made the day before so at least the wait would be good.

Mum and I didn't get lost on our journey to the Gastroenterology department like we usually do in hospitals. It was nice, so I sat down and we started giggling a little, ticking off the boxes on the bingo cards.
Suddenly, only minutes after we sat down, a turquoise clad nurse named Jo came over and said my name. I gulped.
After a little interview with the nurse [where I asked for a copy of one of the pictures of my gut] mum went back to the dull waiting room and I was lead away into an airy ward a few meters off. It was pretty empty but I was told that later in the day they may have to top and tail patients. I was glad that my appointment was brought forward. By this time I was thoroughly enjoying myself, apart from the odd twinge that buried nerves give. I read magazines and felt like a lady of leisure as the nurse tucked the blanket around my feet.
I was also glad that I didn't have to wear a hospital gown. My ski pants were nice and snug under the thick hospital sheet.

Someone said the word "Theresa" and I gulped once again. There was a huge flood of nerves, then a second later resignation and a determination to enjoy this strange experience. Being wheeled into the special biopsy room really helped with the enjoyment part, it was so much fun that I started joking with the nurse who's name was also Theresa.

She clicked one of those cool finger pulse checkers onto my finger and I watched my pulse to up and down on the blue machine to my right.

I wasn't sure how painful or scary the biopsy might be. Considering one of the complications listed in the brochure is "awareness of the procedure"- I was hoping that the drugs would do their thing.

"This tastes gross but it numbs your throat." The nurse said. I told her that I'm all for pain killers and opened my mouth, she sprayed then said, "it makes it feel like you can't swallow but you actually can."
Cool.
She walked out of the room in search of the Dr. My mouth went numb and I felt a bit like I was choking, it felt like I couldn't swallow. Bleugh! And the nurse had deserted me. Oh great.

She came back in with the Dr who, by his appearance and voice instilled in me the feeling that I could trust him and wouldn't mind him shoving that long licoricey cord down my throat. He looked like he knew what he was doing. I didn't trust the nurse the same though and made the "I have bad veins" speech as she pulled out the lure gear. Considering that I had bad veins, she tightened the tourniquet really, really tight. I hated having the lure put in my hand. A lure is one of those things that you see on patients, like a permanent blood test needle + that plastic outer for the vial. It really hurt and bruised quite a bit. She put that plastic sticky stuff on top which made my hand look like it belonged to an old lady.
I felt like a real hospital patient now, with a numb tongue and blood smeared around the ugly lure in my hand. I looked away as the Dr busied himself with something down near where my [now sore] hand was. This was the bit that I'd been dreading, the injection. Surely, it would hurt like crazy.
I felt something funny in my hand and turned toward the Dr, "It shouldn't take too long," he said gesturing, "to get from here" - my hand, "to here," he pointed at my head.
Cool.

I was turned over right onto my shoulder and they put a green mouth guard into my mouth. By that time my eyes were closed and I was drifting out.
That going to sleep feeling was so awesome, I really, really liked it. That's possibly not a good thing, but hey.
I have a slight consciousness of stuff happening, but don't remember anything about the procedure itself.

Half an hour later I opened my eyes a little bit, then closed them. It took about fifteen minutes for me to become fully awake again. I know this because there was a clock right near my bed. I was in the ward again, with the pulse checker still on my finger and the lure still in my hand. But I knew that it had finished, so just lay there, content.


The biopsy itself didn't show any visual damage in my gut, so I have to wait for a week till the results from the lab are sent to my Dr. But that's ok, my sister who has coeliacs didn't have any visual damage either.

Ok, that post was really long, but it gives you an idea of what it's like. If you are ever going for a biopsy/endoscopy - don't freak out. It's a really easy procedure and if you lie back and observe the interesting things you should enjoy yourself.

Monday, June 15, 2009

Week 3.

I think a good word to describe how I feel is "bleh" - although google doesn't think it's a word.
Some symptoms that I'm experiencing from eating gluten: [warning: these are for the interest of science and not for the squeamish]

  • Almost complete loss of brain function. For example, instead of putting hot water from the zip into my Milo, I turned on the tap and poured cold water into my cup. Oops. It didn't taste very nice. Umm, what was I saying, oh yeah, bad brains. I feel like a zombie: always saying "braaains!"
  • Excessive augh... wind and occasional gut aches/discomfort. I'm feeling really bloated and without my huge hoodie on I look like my sister who is six months pregnant.
  • A bit of weight gain too, but it's not surprising considering my lounge lizard and almost gluttonous lifestyle for the last three weeks.
  • Really, really, really tired.
  • Money. Yeah, I've been living it up with squiggles, crumbed fish, fairy bread, gingernuts and other good things. All this creates a little dent in my bank account, but hey, why else do I get money from the government! haha! I even bought some English muffins just so I could quote Oscar Wilde. ["I'm particularly fond of muffins."]
All of those things make assignment writing very difficult, plus now that I've got most of the symptoms finally written up here for everyone to admire, I'll stop complaining and give you a little science lesson.

So, I'm having my biopsy on Thursday. What is it? Simply put it's me lying on a table under general anesthetic [whoop!], tube with a camera on the end shoved down my throat and into the small intestine seen here:
[psst: It's the grey squiggly bit by the way.]


After a short sight seeing tour they grab a sample of the intestine lining and it's over. Now they just have to test the little sample to see if I have coeliacs.

How do they do that?
I don't know. Some involved microscopic method probably. I don't care, as long as they can tell me whether I've got the disease. However I am curious as to what gluten actually
does to my gut lining. So, I looked it up.
Like the controversial "Dr gluten" said, "open your mouth and you see wet skin." [or something like that.] That skin lines all of your insides, [taking a few different forms in different parts actually, but it's all wet.] Anyway, the lining of your small intestine looks a bit like that, however on a microscopic level you can see this, in a cross section of your gut lining:
Ok, this is a healthy gut lining. The crypts [haha, I know! It's not at all gang related...] make the Epithelial cells which sit on the villi absorbing nutrients. They take about two weeks to travel up the villi. The whole of your small intestine lining, taking into account the contours of the villi is about the size of a tennis court. It is really important that everything works well so that you can absorb vital nutrients, like vitamins and minerals.
However, if a person with coeliacs eats gluten this is what happens [over a couple of weeks]:

Gluten kills epithelial cells which causes the villi to collapse [reducing the size of your gut lining by heaps] and the crypts become really deep because they are working overtime trying to produce more epithelial cells, which of course are killed off as soon as they are produced. Without the special cells doing their job the person who owns the intestine finds it really difficult to absorb nutrients. That's why heaps of coeliac people are anemic, because their gut can't absorb the iron.

So, if my gut looks like the latter: I have coeliacs. If not, I'm just gluten sensitive.

Did all that make sense?


Thursday, June 11, 2009


Next week about this time I will be probably lying on a bed somewhere in the hospital, trying to recover from general anesthetic. A few minutes before that I would have been lying there with a tube going down my throat into my intestines.

And guess what, I'm looking forward to it.

In fact it can't come soon enough. You see, the more gluten I eat, the worse I feel. [That's not to say I don't enjoy eating gluten... no, I like gingernuts] So, the sooner the better!

You can tell my brain isn't working ay, I can't think of anything else to write.